first grandchild had a difficult birth. At first all seemed well
but I soon began to feel uneasy. Robert slept a lot and was very
floppy. He found it difficult to suck. My daughter Alison kept
asking what I thought was wrong. In the end I pushed the doctor
into telling her the truth - Robert had cerebral palsy.
watched Alison struggling to feed Robert. I could feel the distress
she was going through. I would go home at night and cry myself
to sleep, I felt so helpless. Alison would meet other mothers
who had babies the same age as Robert, they were all doing things.
Robert did nothing. I decided never to stop trying to find a
treatment that would help my grandson.
months and years went by. At 3 years old Robert was sent to a
special school. He was thin and pale. When you put him down he
couldn't even lift his head off the floor. Nevertheless
at school he was put slumping into standing frames and fitted
with calipers and boots. He looked awful and he just became
worse. He was tied into a body that was no use and he was just
going deeper and deeper into himself.
day I read about a charity called Advance founded by Linda Scotson.
I remembered Linda had been working for many years researching
in the subject of cerebral palsy. Now I discovered that she was
getting results by changing the children's breathing. We
began the new approached called The Scotson Technique in
6 months of treatment we have a different child. At first we
noticed small changes each week. Robert's appearance changed,
he filled out and at last began to look healthy. Now the changes
have begun to speed up.
first lifted his head and then his whole body off the floor.
His arms, which were either limp or moving in a disconnected
way suddenly reached out for me and he gave me a hug. From that
moment he began making eye contact with me and laughing and playing
almost like a normal child. His head and body began to change
shape and lost their flat appearance. His eyes began to sparkle
and he began to push up onto all fours and pull himself up on
the furniture. We can now all see the Robert who should have
been shining through.
NHS had given us no hope - now not only do we have these
changes to delight us every day but a clear understanding why
they are happening and why they will go on.