was born on Christmas Eve 1998. I became ill at the beginning
of November 1999 after 3 "doctors" examined me for
4 days! My mum and dad took me to hospital where we discovered,
in 30 minutes, that I had pneumoccal meningitis. I spent my first
birthday, Christmas and the Millennium in hospital after 3 brain
operations. I was let out with the news that I had Quadriplegic
Spasticity; in other words I would never walk, talk or feed properly.
The "experts" wanted to put a tube in my tummy so that
I could be fed. They also drugged me up so much with a concoction
of "medicine". When I got home I couldn't sit upright,
had to be fed through a nasogastric tube and was generally very
unhappy. My mummy gave me a teet every day dipped in honey to
get me to suck to rid me of this awful tube.
I learned to suck very gently and even managed a smile from the
right-hand side of my mouth (my left was still paralysed). I
gradually started drinking milk from a bottle but couldn't hold
up my head or hold my body straight. Even getting my nappy changed
was very uncomfortable lying on my back. The "doctors" said
it was just my condition; there was no other rhyme or reason!
After my Nitrazapam and kiss good night I still couldn't sleep
a full night. All I had by way of help was half-hour visits from
my physiotherapist once a fortnight.
day my grandma was reading a newspaper and saw an article about
this new treatment called Advanced Neuromotor Rehabilitation
that helped children with my problems, so mummy and daddy took
me down to East Grinstead and I met my new friend Linda Scotson.
She examined me and said she could help. I had no movement in
my arms and little movement in my legs; my posture was poor and
I had no head control. All I could eat was jars of baby food
and drink milk from a bottle, even though I was a big 2 year
old by now.
year and a half onwards I can sit up straight, hold my head up
all by myself and kick my legs, and my arms move too! I can eat
better foods and drink out of a cup. Daddy calls me his little
flower and I hope someday I'll be able to bloom fully.